ENDISC-CIF Chile 2004

Our special appreciation to the Pan American Health Organization PAHO / WHO and the Japan International Cooperation Agency -JICA- for their commitment and continuous support in bringing about this First National Study on Disability.
FIRST NATIONAL STUDY OF DISABILITY IN CHILE Registration No146.896 ISBN: 956-8441-01-8

Translation by

Joyce Gutmann

Design and diagramming

Tilt Diseño Ltda.

Printing

Ograma S.A.

Fondo Nacional de la Discapacidad
(National Fund for Disability)

Huérfanos 1313, 6 floor, Santiago, Chile informaciones@fonadis.cl www.fonadis.cl

Santiago, Chile, May 2005

Printed in Chile During the period that begins with the return to democracy, Chile has undergone significant changes in all areas, like our cities, economy, culture, and lifestyle. The democratic governments have managed to reduce significantly the number of fellow citizens that live in poverty and indigence. We Chileans, more forcefully every day, have begun to demand access to, and respect for our rights. Among the sectors that have seen emerge more extensively and saliency their demands, are those of individuals with disabilities. Many valuable initiatives have come forth in recent years, to favor the progress of this sector in achieving full citizenship. Nevertheless, until now our Country did not have studies available regarding the true extent of Disability in Chile, on which to fundament public policies. For these reasons, and because we believe in the efficacy of social policies responsibility planed, implemented and informed, as Fondo Nacional de la Discapacidad, our goal was to do the First National Study on Disability (Estudio Nacional de la Discapacidad- ENDISC 2004). The study would be based on the new approach of the “International Classification of Functioning, Disability and Health (ICF)”, proposed by the World Health Organization (WHO). Over 190 countries have accepted ICF as the new international standard to describe and determine health and disability. It will allow us to know in depth the extent and complexity that this variable has in Chile. Using a biological, psychological, and social approach, it attempts to attain a coherent and synthesized view on the various aspects of health, physical, individual, and social. The information gathered in this study, regarding the number, type of disability, barriers to social integration and full participation, together with many other sociodemographic variables yet to be studied are going to be extremely useful to plan and center activities oriented to this sector of the Chilean society. These data will also enable us to compare our country’s situation versus the international one. To sum up, the National Study on Disability will generate a tremendous impact on public and private institutions that have to make decisions on a daily basis as well as establish policies oriented to individuals with disabilities. For the first time, Chile has an optimal study to know in depth and work for a radical and positive change in the living conditions and full integration of thousands of Chileans that have a lot to say and contribute to the development, and coexistence of our society. As Fondo Nacional de la Discapacidad and as the Government of Chile, we are proud to provide this summary of the main results of the First National Study on Disability.
Andrea Zondek Darmstadter Executive Director

Fondo Nacional de la Discapacidad

FONADIS	INE (National Statistics Institute)
Mrs. Andrea Zondek D.	Mrs.Lylian Mires A.
Mr. Mauricio Zepeda S. (Coord.)	Mr. Franklin Arancibia R.
Mr. Eladio Recabarren H.	Mrs. Elizabeth Aguirre L.
Mr. Francisco González M.

Mr. Armando Vásquez B.	Pan American Health Organization (PAHO)
Mr. Nixon Contreras B.

Mrs.Branca Legetic	Pan American Health Organization (PAHO)

Mr. Alberto Minoletti S.	Ministry of Health
Mr. Claudio Betancur M.
Mr. Jorge Szot P.
Mr. Hernán Soto M.

Mrs. Patricia Méndez Z.	National Rehabilitation Institute “Pedro Aguirre Cerda”
Mr. Alberto Vargas P.

Mr. Claudio Santibáñez S.	Ministry of Planning

Mr. Hideo Takei	Japan International Cooperation Agency – JICA
Miss Yoko Ogawa

The Fondo Nacional de la Discapacidad, FONADIS, is grateful to all the organizations and individuals that worked in the various stages of development of the First National Study on Disability (ENDISC – Chile 2004).
Statistical background on disability in Chile
Objectives, study variables, and conceptual framework Disability prevalence index GENERAL DESCRIPTION

National disability prevalence

Degree of disability
Disability and deficiency
Households and people with disabilities
Territorial distribution
Break down by gender
Disability per range age
Socio economic status and impact of disability on the family
Disability and work
Disability and education